Parents who are getting older and special children who are in their prime but cannot do without care… “Supporting the disabled” families are looking forward to social assistance
Text/Yangcheng Evening News All-Media Reporter Li Meiyan Intern Guo Yixuan
Liwan District, at 6 am, 78-year-old Aunt Xian got up and prepared breakfast, turned around and walked into the room to wake up her daughter to take medicine, and helped her record the heart rate in the morning; Haizhu District, at 9 am, it was already a bit difficult for Aunt Lian, 74, to get up and down the four-story stairs, but in order to allow her daughter who doesn’t like to go out more, she insisted on taking her daughter to the vegetable market to buy vegetables; at 4 pm, Aunt Liao, 65, directed her son to move a bag of clothes to the second floor, and they planned to send these clothes to her friends in the hospital the next day.
They are typical families of “supporting the disabled by the elderly”: their parents are at retirement age, but because their only children are accompanied by intellectual or mental disorders, they are still running around to support their disabled children, making it difficult to enjoy their old age as their peers. In December last year, the first social service in China to serve the parents of special children, Guangxi.com-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 1950 witch cloth draw-Cinema 19 href=”https://funnybookish.com/”>Babaylan 1990 cloth drawWhen children’s future placement planning difficulties and challenges, more than 60% of parents are most worried that their children’s lives are not guaranteed.
The parents who are getting older and the special children who are in their prime but cannot do without care, the elderly care anxiety of families who “maintain the disabled” are tangled into a huge question mark, waiting for the society to straighten it with practical actions.
Two-year-old families with mentally disabled participate in parent-child fun sports meetings
The 78-year-old mother and 44-year-old daughter: the thoughtful plan and the increasingly aging reality
2016 was the most difficult year in Aunt Xian’s memory—first with her husband’s lungsThe emphysema was sent to the ICU. After three months of hospitalization, he finally returned home to rest. His daughter A Ting, who was mentally disabled, suffered a stroke and was admitted to the hospital.
At that time, Komiks 1960 witch cloth drawAunt Xian, who was already 72 years old, took on the burden of the family alone. Every day, he ran around the hospital and took care of the two bedridden patients, until their condition gradually stabilized. During that time, she lost more than ten pounds at once.
But the crisis has not really passed. In August 2020, her husband, who had been bedridden for a long time, passed away. In September, A Ting was admitted to the hospital due to swelling throughout her body. The problem of bradycardia after the stroke became more and more serious. At the lowest point, her heart rate was only more than 20 times per minute. The doctor suggested installing a pacemaker for A Ting, otherwise “it is possible to fall asleep and the person will be gone.”
“It would be fine if I really fell asleep and left, but I was afraid of being paralyzed and even suffering.” Aunt Xian said that A Ting was hospitalized three times last year. For a period of time, she even had difficulty getting up and had to deal with urination and defecation in bed. In August last year, she made up her mind to install a pacemaker for A Ting: “I’m recovering well now, but my right hand is not as flexible as before and I can’t hold things.”
The hardest time was when I was in the hospital for a caregiver. Aunt Xian, 78, has hypertension, diabetes and heart disease, and her health is no longer as good as before. Once, A Ting was hospitalized for two weeks and happened to have an available bed in the ward, so she pleaded with the doctor and went in. For this reason, she has been thinking about the good of the hospital and the doctor: “I also have a heart disease, and I can’t take care of myself even if I take care of my daughter. The doctor asked me and my daughter to be hospitalized together, which saved me from hiring a nursing staff.”
Considering that she is getting older, Aunt Xian has asked many questions over the years and made as meticulous arrangements for her 44-year-old daughter as much as possible: She joined the unit for her daughter and bought social security for more than 14 years in a row. Now she is still missing for 9 months and has been 15 years since she has been missing. She bought two “Safe Project” insurances. Last year, A Ting’s total hospitalization fee was more than 130,000 yuan, and in the end, the medical insurance and insurance reimbursement was only more than 15,000 yuan. She also applied for a waiting round for her daughter at the Guangzhou Disabled Care Home, hoping that when she is unable to take care of her daughter in the future, her daughter can spend the rest of her life in the nursing home; she even began to consider who will be her daughter’s guardian after she leftKomiks 1960 witch cloth draw.
The thoughtful plan faces the increasingly aging reality, sometimes it is inevitable to be stretched. In September last year, due to the increasing problem of lumbar disc herniation, Aunt Xian had to be hospitalized for surgery. But now A Ting can’t take care of herself completely at home, and she has no choice but to take care of herself.Then, she had to ask her sister to come to take care of her for a few days, and “my sister is also in her 70s.”
Some time ago, the staff came to Aunt Xian to conduct a comprehensive assessment of her elderly care needs, and the assessment results were mild disability and second-level care. “To take good care of her, I must ensure that I am healthy.” Since A Ting had a stroke, in order to facilitate nighttime care, Aunt Xian has been sleeping in the same bed with her daughter. She had to get up to check if there was any movement. “I hope I can stay at home until I can’t take care of her, and see if it’s possible to live in a nursing home with her.”
A Ting (left) and Aunt Xian were looking at photos of the previous trip.
The 65-year-old mother and 38-year-old son: “I have the ability to take care of myself, and I will live a better life in the nursing home in the future.” “Catch this place with my right hand and pick it up.” As soon as I came back from outside, Aunt Liao pointed out that her son A Ming moved a bag of clothes to the second floor. A Ming wiped his sweat, grabbed the knot pointing to by his mother with his right hand, and took the bag into his arms with his left hand. He looked focused, without saying a word, and obediently walked towards the stairs.
This is the daily life of the mother and son. A Ming, 38, was diagnosed with an intellectual disability since childhood and was difficult to complete slightly complicated tasks independently. Aunt Liao, 65, patiently dismantled each move one by one and converted it into instructions that her son could understand and execute, thereby exercising his ability to take care of himself.
“In 2007, he suddenly fell ill, and after 10 years of adjustment, his condition was basically stable to control it.” Looking back now, Aunt Liao still blames herself. A Ming suffered from epilepsy at the age of 6, but at that time, due to lack of understanding of this disease, he missed the best opportunity to effectively control it. In 2007, A Ming’s condition took a sharp turn for the worse. The schizophrenia caused by epilepsy made him unable to sleep at night. “Sometimes, he mumbled alone and spoke to the air.” In those 10 years, she took her son to seek medical treatment and medicine: “At the beginning, every month’s pension is available.It’s only 1,111 yuan, and he has to spend six or seven hundred yuan every month just taking medicine. ”
She never avoided his condition in front of Ah Ming, and even often “vaccinate” himKomiks 1960 witch cloth draw said, “My mother will leave sooner or later.” In the race against time and disability, her desire to help her son realize her basic self-care is becoming more and more urgent: “If I leave, he has the ability to take care of himself, and he will live a better life in the nursing home in the future. ”
At the beginning of this year, Aunt Liao had to be admitted to the hospital for thyroid problems. How to take care of A Ming’s daily life became the biggest problem.
She left enough food in the iron box where she kept her change and specified Cinema 1950 witch cloth drawA Ming was in Babaylan 1990 clothes Draw A snack shop near her home solved three meals a day, and asked the owner of the snack shop to help him pay attention to A Ming’s situation; at the same time, she entrusted a distant relative to accompany A Ming at home every night to prevent accidents such as “touching the electric door with wet hands”. Only after everything was arranged was done, she could go through the admission procedures with peace of mind.
But just when Aunt Liao was hospitalizedKomiks 1960 witch clothes draw, A Ming, who had not seen her mother for a long time, called and said, “You are not at home, I am alone. Cinema 1950 witch clothes draw lonely.” The call made her break her defense in an instant. She softly comforted the other end of the phone and said, “You clean up the house and your mother will be back.” The obedient A Ming focused on polishing the tables, chairs, benches, and corners in the house to a shiny Komiks 1960 witch cloth draw Guangwaliang: “He wiped the iron gate outside the house all the way, but the wind blew the door slammed and locked him outside. “
Now A Ming, he can eat, dress, take a shower and go to the toilet, shop independently, and carefully place the things at home neatly. He occasionally listens quietly to the tricycle outside the door crossing the loose stone road, “bang”When he was banging, he went away. He liked to play basketball, often wandered around Yuexiu Park Stadium with his ball, waiting for the evening, the stadium was getting fewer and fewer people, and he carefully shot. He also liked to browse current news on his mobile phone, claiming that he liked to watch international news the most. Even when the reporter asked him what the hot international news was that day, he blurted out that “Biden was infected with the new crown.”
A Ming like this also made Aunt Liao fantasize what would happen if her son had a sound intelligence development: “In that case, he should have already started a family now. ”
Parents of special children gather together to participate in entertainment activities
The 75-year-old mother and 38-year-old daughter: Respite service, let family affection take occasional vacation
After her husband passed away, the burden of caring for the only daughter of intellectual disability Longlong was all on Aunt Lian’s shoulders.
From the outsider’s perspective, Longlong, 38, is not considered a caring “little cotton jacket”. She is sensitive by nature and does not like to contact the outside world. She often stays at home to watch the cartoon “The Guard of the Universe” or read the early education storybooks borrowed by Aunt Lian from the library. Sometimes she has a change in emotions and will lose her temper at her elderly mother, and breaks 6 elderly phones of Aunt Lian’s elderly.
“Although I have raised her for more than 30 years, sometimes I don’t know what she is thinking. “Aunt Lian said that Longlong’s temper came and went quickly like a child, and he could not predict it. “For example, if the food is cold and she will be unhappy if she asks her to make it hot before eating. Sometimes she was taking medicine and told her to pack up her things for a while, but she was unhappy again. “
Mothers always use the greatest kindness to tolerate and understand their children. In the opinion of Lian, Longlong has poor language expression skills. Some things she knows but cannot express, and will be anxious. When Babaylan 1990 clothes draw, “Don’t conflict with her head, and wait until she finishes her temper, she can only reason with her.”
But the mother, who is overwhelmed by the double burden of life and psychology, also longs to be wrapped up. Draw全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全全�The care burden on Aunt Lian was allowed to go to her sister’s house for a short rest. When talking about this rare “Babaylan 1990 clothes draw” service, Aunt Lian is still full of gratitude: during that time, social workers helped take care of Longlong, led her to learn how to buy vegetables and cook, and study at the street medical station. After discovering the safety hazards of the kitchen, she assisted in contacting professionals to renovate the kitchen. “I think of that social worker when I see the kitchen now.”
Although he kept shouting from time to time, “I will ignore you if I get angry”, when it comes to Longlong, Aunt Lian always surrenders: “What’s the solution? I can’t let her go.”
When her husband was seriously ill and was hospitalized in 2009, Aunt Lian ran to the hospital at both ends of her home, and was unable to find a place suitable for short-term custody. She could only send her daughter to her own sister’s house for care.
In 2016, Aunt Lian had to be admitted to the hospital for surgery due to lumbar disc herniation. She was worried that Longlong would take her to the hospital together: the mother and daughter had three meals a day in the hospital canteen. During the day, Longlong sat and played in the hospital or chatted with the nurses. After dinner, she went home to take a shower and sleep. After going home to rest for three months after surgery, when I was in bed, I was inconvenient to buy vegetables and cook for Longlong, Aunt Lian specially hired a nurse to help.
“She is getting older and older, and our destination is always a nursing home. When I still have the ability, I always want to let her live a warm life with a family.” When I mention the future, even my aunt’s tone was melancholy and helpless. She planned to sell her house she lives in now and take Longlong to live in a nursing home. “I hope that in the future there will be some institutions like this that can accept us and live in together.”
Parents of special children participate in the open day estate supervision event for lawyers
In-depth interpretation
How to support the elderly with “Super the elderly and the disabled”:
The answer is still being explored. Changes have occurred
Parents who are getting older and children who are in their prime but still cannot do without care. I hope that an institution can accept elderly parents and disabled children at the same time—it is the same voice of Aunt Lian and others.
《2020 Guangdong Province Disabled CareerThe Development Statistics Bulletin shows that as of the end of 2020, there were 1,774 disabled care service institutions in Guangdong Province, including 30 boarding care service institutions, 1,695 day care institutions, and 49 comprehensive care service institutions. But for older people with mental disabilities, the more common choice is to go to public care institutions. In Guangzhou, there is only one public care institution that is counterpart to those with mental disabilities in Guangzhou Babaylan 1990 cloth draw disabled care home.
In March this year, Cinema 1950 witch cloth drawAunt Lian ranked Longlong in Guangzhou Disabled Care Home, and the latest waiting list for application is 692. As of June 29 this year, 706 people have applied to Guangzhou Disabled Care Home for Nursing. The application time shows that the first waiting staff has been waiting for 11 years—Komiks 1960 witch cloth draw—He applied for waiting in July 2011.
How many families like this “supporting the disabled” in Guangzhou are still there? This may be seen from a set of public data: data from Guangzhou Sunshine Angel Social Work Service Center shows that there are 1,730 registered disabled people in Shilou Town, Panyu District, Guangzhou, and among the disabled people, there are 117 families with disabilities who rely on elderly people aged 60 or above to provide care and support, accounting for 6.8% of the disabled people.
“If calculated based on this ratio, there are about 20,000 to 30,000 families in Guangzhou that are ‘soldiers’. If these parents leave in the future, the placement of children will be a big problem and require intervention and attention in advance.” Liang Zhitu, director-general of Guangzhou Yangai Special Children Parent Club, told reporters that since 2018, Yangai has established a member group for double-old families to provide case management, life care, emotional support, information and home skills for double-old families with mentally disabled people. Training and other services, “We hope to explore how to do service support for families with the elderly and disabled through such practices. It is different from ordinary elderly care services and from special children’s families whose parents are not yet retired.”
In Liang Zhitu’s view, the key to truly solving these special family elderly care problems is to return to the community’s home-based elderly care: “This group is too large, and the government’s bottom-up measures can only digest thousands of beds at most, and the existing Komiks 1960 witch cloth drawCan community elderly care service resources, rehabilitation and household access services resources, etc. be applicable to families with “superior care for the disabled”? How to ensure the service and quality of life of these special families? These issues must be considered in the future policy design.”
The answer is still being explored, but some good changes are happening quietly.
In June 2019, under the business guidance of the Yuexiu District Disabled Persons’ Federation of Guangzhou City, the “Guangzhou District People with Mental Disabilities Support Pilot Project for Two Elderly Family Support for Mental Disabilities” was officially launched, and some regular and emergency response services have been gradually formed, such as providing psychological counseling and emotional support, coordinating home-based elderly care personnel to take care of mentally disabled people in a short term to reduce the burden on parents of mentally disabled people, etc. At the same time, it is also gradually improving the service resource library and service support system. Liang Zhitu found that among the more than 30 families they provide case management, parents have gradually learned to refine specific needs, such as how to reasonably plan property and how to do custody, etc., and have a clearer understanding of children’s future planning and resettlement.
It is reported that Guangzhou Yangai Special Children Parent Club has implemented the “Guangzhou ‘Old and Disabled Family Energy Enhancement Support Plan” through the implementation of the 9th Guangzhou Social Organization Public Welfare Venture Capital Activity Funding Project, extending existing practical experience to more “old and disable” families. “At the same time, we have also discovered some new needs, such as breathing services. The government currently does not have relevant service resources. In the next step, we are preparing to establish a temporary care point and explore relevant service models.” Liang Zhitu said.
(At the request of the interviewee, A Ting, A Ming and Longlong are all pseudonyms.)